Archives for February 2020

I had a full set of scans the last couple of weeks, one was the brain MRI which turn out crappy as you saw in my last post, the other one was the CT scan which scans the trunk of my body neck down and organs. Well, if I was waiting for the other shoe to fall, it has fallen. The CT scan came back almost as bad as the brain MRI. Basically chemo has stopped responding. Every tumor has grown and new metastasis are starting to show up in other parts of the body.

My oncologist canceled my scheduled routine chemo today because there is no point in doing it. He suggested a new plan: 2 very heady duty chemo drugs that would not respond as well as the chemo I was on the first time around because if they were better candidates, he would have put me on them in the first place. They come with heavy duty side affects and their responsive period would be shorter on top of not being as effective! The way he explained it is each chemo drug will get rejected by the body sooner. That’s how chemo usually works. There only so many possible drugs for each type of cancer, the more they try, they more the body overcomes them. Given the fact that the first chemo drug they gave me worked to some extend for only 6 months including the full dose and the maintenance dose part. If the second chemo they try would fail even sooner, it may get me 3-4 months if I am lucky. For that few months, I would have to take on the enormous risks of the heavy drug side affects. He is already planning for it to fail, so the next step is to put me on a gene inhibitor drug that’s a different that’s similar to the Tagrisso that was on. Tagrisso worked wonders for me for some time, but this other drug he is not nearly as confident because I already overcome Tagrisson which is the best drug on the market. He expects that to fail as well. The next step after that is immunotherapy which is a hot topic on the market right now since it won the Nobel Prize in cancer treatments. However, lung cancer doesn’t typically respond to immunotherapy. He has treated hundreds of patients on this. It could have serious side affects and is the last option because the lung cancer patients that responded typically has 3 factors which I have none. One of them is they were long term heavy smokers before they were diagnosed. I forgot the other 2 already, but the bottomline is I don’t fit the profile. He is willing to try it as a last resort.

So, after taking in all that information and given it some serious thought. It’s a tough choice for anyone to make, the good old dilemma of quality vs possible quantity. I decided on quality. I will die anyway. At this point, it would be a miracle if I lived to see another Christmas regardless what choice I make. At least I have quality of life right now to enjoy the rest of my life however short that might be.

I will take the brain radiation treatment. It does have long term consequence, like lost of short term memory and cognitive impairments, but usually those symptoms don’t manifest themselves for 2 years… it would be a nice problem to have at the point if I live that long. Short term side affects should be minimum like I would be tired after treatments and I would loose my hair which I don’t really care. I would look good bald, like a very wise nun! 🙂

The brain tumors will come back, it will get me eventually, but something will get me eventually. I think I will have 3 months of good health, maybe 6 if I am very lucky. The lung, liver and other growing tumors will get me into trouble at some point without treatments.

I just finished a book called “The Body” by Bill Bryson, highly recommended by the way. I enjoyed it very much. It gave me so much appreciation of what a marvelous organism we are. Our body has been our most loyal silent servant in our lives! I finished it last night, it literally ended with, we eat well, exercise regularly, made the best choice we can and we die anyway. LOL!! OK, that might not have been the most inspiring ending I ever expected, but so true!

He had a chapter on cancer. He said cell mutations are they way of life’s evolution. Without cell mutations, there is no human evolution. We would still be crocodiles. Genes mutate so that life can evolve, that’s what genes do. Those that don’t evolve and adapt will die. Who is to say my body hasn’t evolve or adapted to cancer on some level to the best of its ability? None of my cancer journey has made any sense, every time I fell better, my cancer inevitably has gotten “better” also, like it is now. What if for some wild reason that my body has figured out a way to tab into cancer’s energy somehow? Cancer cells are also living cells, they are alive and they don’t know how to die. What if this body doesn’t know how to die because I have cells that don’t know how to die??!! We try so hard to extend human lives. Why isn’t anyone out there researching how to tab into cells that don’t die?! I know that’s crazy, those of you who really know me would say, yeah, you are crazy! OK, yes, I am. lol!!

In any case, I surrender to life. Life can have its way with me. If life wants me to live, it will find a way for me to live. If life is done with me, I won’t be a cancer cell to the world. I know how to die.

As a dear friend pointed out to me this afternoon, I have lived a wonderful life. I have a beautiful child (young man). I have an ex-husband that would do more for me than most husbands would. I am standing on a lot of good choices I made all my life. What more could I ask for? More time? I know I would always want that because I am human. Enough is enough. What I have is enough. All of what you have given me is enough. I am more than grateful for all of you that has been part of my life! Thank you!

I can hardly believe this is happening again even though there is a part of me that knows anything could happen on this cancer journey. When I feel good, it doesn’t always translate to scan results. Well, this is a shocker… again.

The latest brain MRI scan result showed the 3 little tumors they did the focused brain radiation are gone, but 30+ more showed up! Again, they are all tiny, the largest one is 5mm, half a dozen of other ones that are 3 or 4mm and countless tiny lesions all over the entire brain. I met with the brain doctor this morning. His suggestion is we do a whole brain radiation everyday for 2 weeks. It needs to be done at a different location by my old radiation doctor that treated me about a year ago. She was the one I almost died from radiation treatment last time. Of course, she is not the reason, it’s the treatment. It’s the same protocol, but of course this time we are not going through the gut. At least she knows my history to radiation. I have a consultation appointment scheduled with her next Wednesday morning. I will make another post then.